I have suffered with hypothyroid symptoms now for more than 10 years. It started with a multi-nodular goiter. My general practitioner wasn't even the one who found it. It was my OB/GYN when I was confirming I was pregnant with Mikayla. I had to wait until after I gave birth to her, but as soon as I stopped nursing, we started to work on my thyroid.
In addition to bloodwork, I had sonograms, a thyroid scan, a radioactive iodine thyroid uptake exam and a fine needle biopsy. The fine needle biopsy was one of the worst experiences of my life. In 2009, it was eventually determined that I should have a partial thyroidectomy to remove the goiter and affected tissue. I found no relief from my symptoms following the thyroidectomy. Doctors monitored my thyroid hormone levels, however, and they concluded that my half of a thyroid functioned normally, because the bloodwork said so.
I still felt awful, and eventually grew another goiter. My general practitioner refused to do anything about it—or even believe me. So I went on my own to get a sonogram to prove there was a goiter. When I brought him the results, he still wasn't alarmed. I asked if I could just try a low dose of Synthroid to see if I felt better, and he said he could lose his medical license if he did that.
I switched doctors. Repeatedly. I begged each one to listen to me and my symptoms—not the paperwork from lab results. So more bloodwork, thyroid scans, another radioactive iodine thyroid test. Each new doctor gave me a renewed sense of hope. Maybe this doctor will finally be the one to help me.
All "normal". So again and again, I was told that my headaches were from stress—so reduce my stress. My fatigue is stress, too, obviously. My weight gain was from overeating—so eat better and work out more. My muscle weakness is because I'm not working out enough and my muscles are atrophying—so hit the gym! Not being able to control my body temperature—well that's odd, but probably not related to your thyroid. My elevated LDL cholesterol—I need to eat better (remember, because I'm fat?). My hoarse voice—I talk all day as a teacher. My hair loss—that's stress, too. My plantar fasciitis—not related at all. Maybe it's my hormones—let's put you on birth control to regulate your hormones. Maybe it's my adrenals—so off I go to have an adrenal function tests and cortisol levels checked. Maybe it's my kidneys—so off I go to get those checked out, too. Maybe it's a gluten allergy—stay away from gluten. Eat more iodine; consume less iodine. Eat kelp. Eat this. Avoid this. You'll be fine.
I've also developed tinnitus. I've always had it, and I thought it was normal until someone told me it's not. And I was nearly in my 30's then. Lately, it's getting worse and worse. I'm starting to lose my hearing, and I can't separate sounds when there is background noise. I find myself turning my head and straining to hear. It takes all my mental faculties sometimes to hear someone speaking. The ringing is incessant, and the worst at night. I had no idea tinnitus could even be related. But one night, I was googling, and I found there is a direct correlation to tinnitus and hypothyroid. Again, another symptom I clearly have hypothyroidism.
I've asked a couple doctors to be referred to the Thyroid and Diabetes Center in Fort Worth. One doctor flat refused. Another said he would do it, but not to expect anything, since my labs were all normal. When I hadn't heard from the TDC in more than a month after the referral, I called them myself. They told me that they had received my referral and labs, but there was nothing they could do for me, since all my labs were within range.
I go through periods where I resign myself to always feeling like this. Always being overweight and feeling awful. Losing my hearing and my sanity. Then I'll get determined to find the answer with yet another new doctor.
In all, I had ten doctors —TEN—tell me that I have normal lab results, so I must be normal.
Last month, I went to see Dr. Number 11. As I told her my symptoms, a wave of despair washed over me as she dismissed everyone one of my symptoms as related to something else. Stress, hormones, adrenals.
So here we go with the bloodwork. "Please, God! Let it show *something*!"
I receive the results, and Hallelujah! I finally had abnormal test results! That means I haven't been imagining it! My hypothyroidism is finally bad enough to show up on a lab test!
Then I get the letter from Dr. Number 11 containing all of my results. She says that the thyroid numbers aren't significant enough, and she's not going to treat me. That my TSH level is normal, as is my T4, so my T3 Uptake and T3 Total don't really matter, because it all cancels each other out. I was dumbfounded. I have never felt such despair and hopelessness.
